Project Details

Description

How can we co-create, communicate and spread experience-based knowledge about the therapeutic use of dance for citizens with Parkinson’s disease?

What potentials and challenges arise in the tensions in dialogue in person-centred, participatory research and research communication?

In the project, these two questions are addressed through a collaborative research design based on a theoretical framework building on dialogic communication theory. In a series of workshops using a range of creative, collaborative methods, people with Parkinson’s disease and their relatives will participate in the co-creation of knowledge about bodily, sensual and aesthetic experiences with Parkinson’s dance courses. The co-created knowledge will be disseminated through graphic narratives.

One aim is to generate knowledge about the involvement of citizens/patients in treatment, research and research dissemination in relation to Parkinson’s disease and also other diseases including other neurodegenerative diseases.

Another aim is to generate knowledge about dance as a form of creative arts therapy in person-centred treatment. In both cases, a central goal is to further develop practices of Citizen involvement in research and research communication and the use of dance in the person-centred treatment of Parkinson’s disease.

With respect to research, the aims are to contribute to the research fields on dialogic communication, patient involvement in person-centred health care, research and research dissemination, and collaborative, qualitative and arts-based research on health including narrative and graphic medicine.

The project is a collaboration between Roskilde University, Parkinsonforeningen og Tivoli Ballet School and is funded with a grant from the Velux Foundation, HUMPraxis Programme (January 2019-December 2021).
StatusActive
Effective start/end date01/01/201931/12/2021

Keywords

  • Parkinson's disease
  • health care ethics
  • creative collaborative methods
  • narrative and graphic medicine
  • dance
  • critical disability studies

Research Output

  • 9 Conference abstract for conference

Dancing with Parkinson’s: co-creating knowledge with roots in participants’ bodily, sensory and aesthetic experiences

Frølunde, L., Christensen-Strynø, M. B. & Phillips, L. J., 5 Feb 2020.

Research output: Contribution to conferenceConference abstract for conferenceResearchpeer-review

Developing collaborative research practices through autoethnography

Phillips, L. J., Christensen-Strynø, M. B. & Frølunde, L., 5 Feb 2020.

Research output: Contribution to conferenceConference abstract for conferenceResearchpeer-review

Dialogic, arts-based methodologies: Ethical questions on facilitating workshop groups in a collaborative research project

Frølunde, L., Christensen-Strynø, M. B. & Phillips, L. J., 5 Feb 2020.

Research output: Contribution to conferenceConference abstract for conferenceResearchpeer-review

Panel: Experiencing Parkinson’s dance: qualitative, quantitative and participatory research insights about health profiles, aesthetics, and relational research ethics

Phillips, L. J., Frølunde, L. & Winge, K., 1 May 2020.

Research output: Contribution to conferenceConference abstract for conferenceResearchpeer-review

Activities

  • 2 Organisation and participation in conference

4th European Congress of Qualitative Inquiry

Maria Bee Christensen-Strynø (Speaker)

5 Feb 20207 Feb 2020

Activity: Participating in or organising an eventOrganisation and participation in conference

Chronicity and Crisis

Maria Bee Christensen-Strynø (Speaker), , Louise Jane Phillips (Participant), & Lisbeth Frølunde (Participant)

1 Nov 20192 Nov 2019

Activity: Participating in or organising an eventOrganisation and participation in conference

Press / Media

Luk dansen op i musik og tale

Louise Jane Phillips & Lisbeth Frølunde

01/03/2019

1 item of Media coverage

Press/Media: Press / Media

Parkinson Café på Akaciegården

Louise Jane Phillips

07/02/2019

1 item of Media coverage

Press/Media: Press / Media

Forskning - ikke i sygdom, men i kommunikation

Louise Jane Phillips

01/02/2019

1 item of Media coverage

Press/Media: Press / Media

Ny forskning i dans for Parkinson-ramte

Lisbeth Frølunde & Louise Jane Phillips

24/01/2019

1 item of Media coverage

Press/Media: Press / Media