Service User Perspectives on the Experience of Illness and Pathway to Care in First-Episode Psychosis

A Qualitative Study Within the TOP Project

Jens Einar Jansen, Peter Michael Wøldike, Ulrik Helt Haahr, Erik Simonsen

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

    Resumé

    Delays in initiating treatment are associated with poor clinical and functional outcomes, yet there remains unclarity as to what facilitates and what acts as barriers to accessing appropriate support for first-episode psychosis. To explore this we examined service users’ views of their illness trajectory and help-seeking behavior. To describe service-users' experiences with and understanding of their illness and pathway to care, including their need for treatment, the role of their relatives and experience with the treatment service. In-depth interviews were conducted with eleven randomly selected service users (median age 20, range 15–24, 6 males, 5 females) diagnosed with a first-episode psychosis and currently enrolled in treatment for this disorder. Fear of stigma, lack of knowledge about mental illness and normalisation of symptoms were barriers to accessing appropriate treatment, while support from significant others and information accessed by internet were reported as important elements in seeking appropriate treatment. The findings regarding barriers to treatment are in accordance with themes found in earlier studies and serve to validate these. Our study highlights the need to include psychological factors such as normalisation of symptoms and fear of stigma when attempting to reduce DUP in early psychosis, in addition to initiatives to reduce service delays. Also, a greater use of the potentials inherent in Internet and social media platforms seems important in this regard.
    OriginalsprogEngelsk
    TidsskriftPsychiatric Quarterly
    Vol/bind86
    Udgave nummer1
    Sider (fra-til)83-94
    ISSN0033-2720
    DOI
    StatusUdgivet - 2015

    Citer dette

    Jansen, Jens Einar ; Wøldike, Peter Michael ; Haahr, Ulrik Helt ; Simonsen, Erik. / Service User Perspectives on the Experience of Illness and Pathway to Care in First-Episode Psychosis : A Qualitative Study Within the TOP Project. I: Psychiatric Quarterly. 2015 ; Bind 86, Nr. 1. s. 83-94.
    @article{131fbddf09e341f4adb2b6bcb434dc4e,
    title = "Service User Perspectives on the Experience of Illness and Pathway to Care in First-Episode Psychosis: A Qualitative Study Within the TOP Project",
    abstract = "Delays in initiating treatment are associated with poor clinical and functional outcomes, yet there remains unclarity as to what facilitates and what acts as barriers to accessing appropriate support for first-episode psychosis. To explore this we examined service users’ views of their illness trajectory and help-seeking behavior. To describe service-users' experiences with and understanding of their illness and pathway to care, including their need for treatment, the role of their relatives and experience with the treatment service. In-depth interviews were conducted with eleven randomly selected service users (median age 20, range 15–24, 6 males, 5 females) diagnosed with a first-episode psychosis and currently enrolled in treatment for this disorder. Fear of stigma, lack of knowledge about mental illness and normalisation of symptoms were barriers to accessing appropriate treatment, while support from significant others and information accessed by internet were reported as important elements in seeking appropriate treatment. The findings regarding barriers to treatment are in accordance with themes found in earlier studies and serve to validate these. Our study highlights the need to include psychological factors such as normalisation of symptoms and fear of stigma when attempting to reduce DUP in early psychosis, in addition to initiatives to reduce service delays. Also, a greater use of the potentials inherent in Internet and social media platforms seems important in this regard.",
    author = "Jansen, {Jens Einar} and W{\o}ldike, {Peter Michael} and Haahr, {Ulrik Helt} and Erik Simonsen",
    year = "2015",
    doi = "10.1007/s11126-014-9332-4",
    language = "English",
    volume = "86",
    pages = "83--94",
    journal = "Psychiatric Quarterly",
    issn = "0033-2720",
    publisher = "Springer New York LLC",
    number = "1",

    }

    Service User Perspectives on the Experience of Illness and Pathway to Care in First-Episode Psychosis : A Qualitative Study Within the TOP Project. / Jansen, Jens Einar; Wøldike, Peter Michael; Haahr, Ulrik Helt; Simonsen, Erik.

    I: Psychiatric Quarterly, Bind 86, Nr. 1, 2015, s. 83-94.

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

    TY - JOUR

    T1 - Service User Perspectives on the Experience of Illness and Pathway to Care in First-Episode Psychosis

    T2 - A Qualitative Study Within the TOP Project

    AU - Jansen, Jens Einar

    AU - Wøldike, Peter Michael

    AU - Haahr, Ulrik Helt

    AU - Simonsen, Erik

    PY - 2015

    Y1 - 2015

    N2 - Delays in initiating treatment are associated with poor clinical and functional outcomes, yet there remains unclarity as to what facilitates and what acts as barriers to accessing appropriate support for first-episode psychosis. To explore this we examined service users’ views of their illness trajectory and help-seeking behavior. To describe service-users' experiences with and understanding of their illness and pathway to care, including their need for treatment, the role of their relatives and experience with the treatment service. In-depth interviews were conducted with eleven randomly selected service users (median age 20, range 15–24, 6 males, 5 females) diagnosed with a first-episode psychosis and currently enrolled in treatment for this disorder. Fear of stigma, lack of knowledge about mental illness and normalisation of symptoms were barriers to accessing appropriate treatment, while support from significant others and information accessed by internet were reported as important elements in seeking appropriate treatment. The findings regarding barriers to treatment are in accordance with themes found in earlier studies and serve to validate these. Our study highlights the need to include psychological factors such as normalisation of symptoms and fear of stigma when attempting to reduce DUP in early psychosis, in addition to initiatives to reduce service delays. Also, a greater use of the potentials inherent in Internet and social media platforms seems important in this regard.

    AB - Delays in initiating treatment are associated with poor clinical and functional outcomes, yet there remains unclarity as to what facilitates and what acts as barriers to accessing appropriate support for first-episode psychosis. To explore this we examined service users’ views of their illness trajectory and help-seeking behavior. To describe service-users' experiences with and understanding of their illness and pathway to care, including their need for treatment, the role of their relatives and experience with the treatment service. In-depth interviews were conducted with eleven randomly selected service users (median age 20, range 15–24, 6 males, 5 females) diagnosed with a first-episode psychosis and currently enrolled in treatment for this disorder. Fear of stigma, lack of knowledge about mental illness and normalisation of symptoms were barriers to accessing appropriate treatment, while support from significant others and information accessed by internet were reported as important elements in seeking appropriate treatment. The findings regarding barriers to treatment are in accordance with themes found in earlier studies and serve to validate these. Our study highlights the need to include psychological factors such as normalisation of symptoms and fear of stigma when attempting to reduce DUP in early psychosis, in addition to initiatives to reduce service delays. Also, a greater use of the potentials inherent in Internet and social media platforms seems important in this regard.

    U2 - 10.1007/s11126-014-9332-4

    DO - 10.1007/s11126-014-9332-4

    M3 - Journal article

    VL - 86

    SP - 83

    EP - 94

    JO - Psychiatric Quarterly

    JF - Psychiatric Quarterly

    SN - 0033-2720

    IS - 1

    ER -