Projekter pr. år
Abstract
Person (or patient)-centeredness has become a central principle of health policy in many countries. Placing the person in the “centre” entails that the value of experience-based knowledge is recognized and that citizens/patients/clients participate as co-producers in organizational development, individual treatment and collaborative, participatory research. According to the literature, there are many challenges in enacting person-centeredness. This presentation aims to contribute to research approaches to the challenges in participatory research by illustrating the use of a particular approach in the research project, Dancing with Parkinson’s.
In the project, 43 participants in Parkinson’s dance classes (people with Parkinson’s disease and partners) take part as co-researchers, together with three university researchers, in a series of workshops designed to make space for co-creating knowledge across a plurality of voices, articulating bodily, aesthetic, visual and narrative ways of knowing. The approach is based on a theoretical framework that, combining Bakhtin’s theory of dialogue and Foucault’s theory of power/knowledge and discourse, theorizes challenges in collaborative research relations as tensions intrinsic to power-imbued meaning-making across different voices.
The approach builds on relational ethics – an ethical foundation for research relations– in integrating critical, reflexive analysis of the tensions into the research process. How can the tensions in participatory, collaborative research relations be tackled through a reflexive approach to relational ethics - in Bakhtin’s terms, “an ethics of dialogue”? This question will be addressed through analysis of three meetings of the steering and advisory groups and three co-creative workshops. Finally, the presentation will discuss the (de)limitations of the approach.
In the project, 43 participants in Parkinson’s dance classes (people with Parkinson’s disease and partners) take part as co-researchers, together with three university researchers, in a series of workshops designed to make space for co-creating knowledge across a plurality of voices, articulating bodily, aesthetic, visual and narrative ways of knowing. The approach is based on a theoretical framework that, combining Bakhtin’s theory of dialogue and Foucault’s theory of power/knowledge and discourse, theorizes challenges in collaborative research relations as tensions intrinsic to power-imbued meaning-making across different voices.
The approach builds on relational ethics – an ethical foundation for research relations– in integrating critical, reflexive analysis of the tensions into the research process. How can the tensions in participatory, collaborative research relations be tackled through a reflexive approach to relational ethics - in Bakhtin’s terms, “an ethics of dialogue”? This question will be addressed through analysis of three meetings of the steering and advisory groups and three co-creative workshops. Finally, the presentation will discuss the (de)limitations of the approach.
Originalsprog | Engelsk |
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Publikationsdato | 1 maj 2020 |
Status | Udgivet - 1 maj 2020 |
Begivenhed | The 18th International Conference on Communication, Medicine, and Ethics - Aalborg University, Aalborg, Danmark Varighed: 1 jul. 2020 → 3 jul. 2020 Konferencens nummer: 18 https://www.communication.aau.dk/research/dihm/events/comet2020/ |
Konference
Konference | The 18th International Conference on Communication, Medicine, and Ethics |
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Nummer | 18 |
Lokation | Aalborg University |
Land/Område | Danmark |
By | Aalborg |
Periode | 01/07/2020 → 03/07/2020 |
Andet | Online conference |
Internetadresse |
Emneord
- collaborative research
- Parkinson's dance
- relational research ethics
- Parkinson's disease
Projekter
- 1 Afsluttet
-
At danse med Parkinson (støttet af Velux Fondens HUMpraxis program)
Phillips, L. J. (Projektleder), Frølunde, L. (Projektdeltager) & Christensen-Strynø, M. B. (Projektdeltager)
01/01/2019 → 30/06/2022
Projekter: Projekt › Forskning