Ensomt ansvar for pårørende til patienter med KOL

Tanja Sofie Hansen*, Vibeke Nørholm*, Anne Brødsgaard*

*Corresponding author

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Abstract

Aim: To explore the experience of relatives of patients with severe Chronic Obstructive Pulmonary Disease (COPD), in and out of the hospital.
Background: COPD is associated with low quality of life, anxiety and depression. The carer in the hospital has the primary focus on the patients. Therefore, further understanding is needed, which is focused on what the relatives experience.
Methods: A qualitative design was used with six focus groups conducted in 2015 with 12 relatives of patients with severe COPD. They were analysed with Malterud’s systematic text condensation.
Results: Three main themes emerged: Concern and anxiety is a part of the relatives’ everyday life. Information and knowledge about COPD is necessary. To be a relative of the patient means major responsibility.
Conclusions: Relatives want to be the main caregiver, but seek knowledge and support from the healthcare professionals
Bidragets oversatte titelA lonesome responsibility for relatives of patients with COPD
OriginalsprogDansk
TidsskriftKlinisk Sygepleje
Vol/bind32
Udgave nummer4
Sider (fra-til)311-324
Antal sider14
ISSN0902-2767
DOI
StatusUdgivet - 2018
Udgivet eksterntJa

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